Last Edited: July 2023

Use of this Website

The icancme.ca website (the ‘Site’) provides content concerning the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis (ICanCME) Research Network and hosts a searchable database of ICanCME members. The Site has been designed and developed through the use of public grant funding administered by the Centre Hospitalier Universitaire Sainte-Justine (CHU-Sainte Justine). By accessing and using the Site, you are agreeing to the Terms of Use (‘Terms’). The ICanCME Research Network (in consultation and alignment with CHU-Sainte Justine policies) reserves the right to modify the Terms at any time and without notice by updating this posting. Your continued access or use of the Site will mean that you agree to any changes.

User Obligations

Anyone who uses the Site shall comply with the following obligations:

    1. Shall not use this Site for any purpose in violation of any laws, including local, national or international laws.
    2. Shall not sell, resell or exploit for any commercial purpose any part of the Site, any use of the Site or any right of access to the Site.
    3. Shall not obstruct, disrupt or misuse the Site, servers, networks connected to the Site, or refuse to comply with any requirements, procedures, general rules or regulations applicable to networks connected to the Site;
    4. Shall not collect and store personal data relating to other users.
    5. Provide true, accurate, current, and complete information about yourself and any organization you represent (‘User Data’).

Also, network members must choose a username and password which will allow access to the member registry and are solely responsible for maintaining the confidentiality of the password and for any actions that may be carried out under your username and/or password. It is also your responsibility to immediately inform the network of any unauthorized use of your username and/or password and/or any breach of security and to take all necessary measures to ensure optimal security conditions when using the Site. The CHU-Sainte Justine cannot at any time be held responsible for any loss or damage occurring as a result of failure to comply with one of the obligations of this paragraph.

Termination

We may terminate all or part of the right of access corresponding to your username and password, and even delete your username and password. We also have the right to remove or move any content within the Site, for any reason, but in particular due to lack of use, or if we have good reason to believe that you have breached these Terms of Use. Any termination of your access to the Site pursuant to the terms hereof will occur without prior notice. We are entitled to deactivate or delete at any time and with immediate effect any information and/or prohibit any subsequent access to the Site. The CHU Sainte-Justine cannot at any time be held liable to you or to a third party for any termination of your access to the Site.

Privacy Policy

We are committed to protecting your security and your privacy, and in particular the personal information that you entrust to us, where applicable, when using the Site.

The following describes our Privacy Statement as it applies to the Site:

    1. We will only use your personal information for the stated purposes for which it was collected, unless you provide consent otherwise. Your personal information will only be disclosed to or accessed by CHU Sainte Justine employees or agents with a need to know in relation to the purposes for which it was collected.
    2. We do not automatically gather any personal information from you, such as your name, phone number, or email address. This information is only obtained if you provide it voluntarily, through contacting us via email, completing an online form, or registering as a network member. Any information that you choose to provide will be protected in accordance with applicable privacy legislation and CHU Sainte Justine policies and procedures.
    3. We will not sell or rent your personal information to any third parties.
    4. We employ software programs to monitor network traffic to identify unauthorized attempts to upload or change information or otherwise cause damage. This software receives and records the Internet Protocol (IP) address of the computer that had contacted the Site, the date and time of the visit and the pages visited. We make no attempt to link these addresses with the identity of individuals visiting our Site unless an attempt to damage the Site has been detected.
    5. We will use Google Analytics to provide detailed statistics about how a user uses this Site. Details are available here: https://developers.google.com/analytics/devguides/collection/gajs/cookie-usage.
    6. We use per-session cookies. The per-session cookies do not collect personal information about you. Per-session cookies are used to store information within a session (or visit to the Site) and allow the user to quickly navigate many pages of the Site. These cookies are deposited on a user’s computer only while the user is visiting the Site and typically expire when the user’s session ends, i.e., when the user closes the browser or leaves the site.

Copyright/Permission to Reproduce

Materials on the Site have been produced and/or compiled by members of the ICanCME Research Network for the purpose of facilitating networking and collaboration within research. The material on this Site is covered by the provisions of the Copyright Act, by Canadian laws, policies, and regulations and by international agreements. Such copyright serves to identify the information source and, in specific instances, to prohibit reproduction of materials without written permission.

Non-Commercial Reproduction

Information on the Site has been posted with the intent that it be readily available for non-commercial use. Unless otherwise noted by the application of the copyright symbol, materials on the Site may be reproduced, in part or in whole and by any means, without charge or further permission. We ask only that:

    1. Users exercise due diligence in ensuring the accuracy of the materials reproduced;
    2. The ICanCME Research Network be identified as the source or author; and
    3. The reproduction is not represented as an official version of the materials reproduced, nor as having been made, in affiliation with or with the endorsement of the ICanCME Research Network or CHU-Sainte Justine.

Commercial Reproduction

Reproduction of multiple copies of material on this Site, in whole, or in part, for the purposes of commercial redistribution is prohibited.

Third-Party Materials

Some of the materials and graphical elements found on the Site are subject to copyrights held by other organizations. In such cases, some restrictions on the reproduction of materials or graphical elements may apply and it may be necessary to seek permission from the rights holder prior to reproducing the material.

External Hyperlinks

Any links to external websites or internet sources are provided solely for informational purposes. The CHU-Sainte Justine is not responsible for the accuracy, currency or the reliability of the content. The CHU-Sainte Justine does not offer any guarantee in that regard and is not responsible for the information found through these links, nor does it endorse the sites and their content.

Visitors should also be aware that information offered by other websites or internal sources may not be subject to the Privacy Act, the Official Languages Act and may not be accessible to persons with disabilities. The information offered may be available only in the language(s) used by the sites in question and visitors should research the privacy policies of the sites before providing personal information.

Accordingly, it is the User’s responsibility to exercise good judgment in the use of the Site content, and to assume all risks relating thereto, and in particular when relying on the timeliness, usefulness or completeness the content of sites and external sources offered by the Site. Links to sites offering downloadable software are provided for your convenience only and the CHU Sainte-Justine cannot be held responsible for any difficulty associated with downloading such software.

Official Languages

We strive to ensure all information on this Site is available in both English and French. However, visitors should be aware that some information from external sources may only be in the language in which they are provided.

Legal Disclaimer

We do not and cannot guarantee the accuracy of the information contained in the Site. Anyone using this information on this Site does so at his or her own risk; any loss arising from the use of information on this website is the sole responsibility of the user. You expressly accept that CHU Sainte-Justine is not responsible for and expressly disclaim any responsibility, whether expressed or implied, for the accuracy, adequacy, or completeness of the Site or for the consequences, whether direct or indirect and whether known or unknown, of using the Site. The CHU Sainte-Justine will not be responsible for any injury or damage arising from its use.

You expressly accept that CHU Sainte-Justine does not assume any responsibility for the uninterrupted, timely, secure or error-free operation of the Site or warrant or represent that the Site is free of viruses or other harmful components. You will be solely responsible for any damage to your computer or loss of data resulting from any downloading of material. No advice or information, whether oral or written, obtained by you from the network or during the use of the Site, is likely to create warranties not expressly provided for in these Terms of Use.

Governing law and jurisdiction

Your use of the Site and any dispute arising out of such use of the Site is governed by all applicable federal laws in Canada and the laws of the Province of Quebec.

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